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Multiple Sclerosis (MS)
Personal Stories
This section lists personal websites. These websites feature information about the webmaster's personal story of Multiple Sclerosis. Most of the webmasters are MSers. Some are caregivers (carers) to someone with Multiple Sclerosis. Some are doctors specializing in Multiple Sclerosis. Most sites also include some links to other Multiple Sclerosis resources. Many also include other additional information (e.g., motivational and inspirational stories, aphorisms related to Multiple Sclerosis, Multiple Sclerosis graphics, etc.)
Also check the general links page. Some of the larger personal pages are listed there.
 Angela Pittman-Smith:
A volunteer with MedSupport FSF International.
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Anne Cowles, Violinist:
This website centers on Anne's musical endeavors, but touches on her struggle with MS as well. Anne finds that her love for music inspires her adapt to the challenges created by the illness - for example, letting go of some complicated live solo work and joining bands, recording CD's. "It's a constant process of struggling, letting go, grieving, allowing new ideas to emerge, and allowing my passion for those ideas to overtake me and keep me going."
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Betty's House - Life After MS:
Betty Iams tells her own story, and tells of the holistic management program she developed to address her MS.
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Brejcha Personal and disAbility Resource Site:
A site with lots of disability resources and a separate
MS page.
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Brian's Home Page:
Includes an "almost live" picture of Nashville and a nice set of MS links.
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Bugs,
Bikes and Brains:
A blog by Shauna MacKinnon ... Diagnosed with MS in Jan.1998; On
Avonex since Sep.1999;. Couch potato until Mar.2006; . Took up bicycling...wheeeeee!
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Butler's Haven:
Recently updated with information about the move to California.
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Caneman2:
Multiple Sclerosis, Cajuns and canes.
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Carolyn Cherry Ross Zimmer's Multiple Sclerosis Links
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Catherine W. Britell, MD:
A doctor with a special interest in Multiple Sclerosis.
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Christopher Baffer:
Proclaiming "I'm not dead yet!", the page offers personal information on survival.
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Coping and Prevailing with Multiple Sclerosis and Other Life Struggles:
Features Thomas Bayuk's book.
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CuteDog's Doggoned Home Page (Patsy Garbadeen):
Patsy passed away on 19.Dec.2000. She was well known on the MS–Quads email
list.
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Diana Cornwell:
A new personal site, with an MS section.
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Diane in Tennessee:
A lovely personal site.
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Donna's Journey:
Donna's personal story. Donna also started the not-for-profit organization MS With Attitude Association of Alberta.
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Dudley Delany: Edgar Cayce's MS Treatment Yahoo! Group:
A message board for Cayce's treatment.
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Espirit's MS Page:
A very lovely personal site.
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Eva Marsh:
Eva, who first experienced the symptoms at the age of 8, is the author of Black Patent Shoes - Dancing With MS a metaphor for the steps in self healing and recovery. She also speaks on this topic.
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Facing the Dragon:
Kathleen Hall's personal page
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Flora Ayers, In Memory Of:
A tribute site to a special mother.
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Gloria's MS Journey
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Homer's
MS Blog:
Homer is from Greece and has been suffering from MS for 10 years. Now, after
many adventures he is almost symptom free. His blog also links to his site.
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Hope is the Last to Die – MS & Me:
Bob's site about his MS. It includes many links to MS sites and also links to prayer request sites.
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Inspiration for Peace and Strength:
David Leonardo's site features inspirational thoughts and stories to give hope and determination to the hurting. Includes information on his new book.
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Irish Multiple Sclerosis Net Guide:
Edwina has this site, not just for the Irish, but for everyone with MS.
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Jen's M. S. Page:
A personal site with resources, tips, and some uplifting thoughts.
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Jill's Recovery Page
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JNJ: Janey Roberts:
Janey posts on the MS–Quads email list.
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Karen's Book About Multiple Sclerosis:
Telling her story and gathering others' into a new book.
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Karen G. Stone: Awakening to Disability:
In her book, Awakening to Disability, Karen (a disability activist with the Albuquerque Journal) tells a very human story about breaking barriers.
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Kay and Randy's Universe:
Some beautiful GIFs.
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Kemp's Pad:
A minister and MSer. (members.aol.com/jwkmoe)
Ken's Multiple Sclerosis Info Site (www.dcr.net/~khoward)
KnowMS.com:
A place to reach out. A place to share. A place to know. An online community of people with multiple sclerosis dedicated to sharing personal stories and experiences.
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LilAngel's Piece of Heaven:
An MSer with a deeply Christian website. (members.tripod.com/~Cherubikins/index.html)
Living With MS:
Robbie Putnam's site about herself, her family and her MS. (livingwithms.homestead.com/welcome.html)
Mainly Cats:
Originally mainly about cats; now much more, including Multiple Sclerosis (www.geocities.com/Heartland/Meadows/4783)
Marlii's Maelstrom (www.geocities.com/HotSprings/Spa/7750)
MSC2C
Cycle Project:
Ralph Allison's site promoting a bike ride. Three young people, one of whom
suffers from Multiple Sclerosis (MS) will attempt to cycle 140 miles, between Whitehaven and Sunderland, in three days. The site includes a running total of the pledges.
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MS My Way (www.oznet.com/msmyway)
MS Web People:
A personal site and excellent MS web forum by Peter Anderson. It also uses some of the most interesting presentation techniques of any I've encountered.
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Multiple Sclerosis Alternative Remedies:
Dianne's site focuses on her Bee Venom Therapy and includes links. (www.frontiernet.net/~magjr/home.html)
Multiple Sclerosis as a Spiritual Guide:
Includes both Danish and English versions. Focuses on holistic therapy. (home12.inet.tele.dk/c_kolsen)
MyMSViews: Oishda's Multiple Sclerosis Resource Page:
Oishda has MS. The site includes personal information about her, links, articles and more.
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Nansi's Nook:
A personal story of a renewed life. (www.geocities.com/Heartland/Forest/1626)
Our Refuge:
Stories and meditations for MSers (www.geocities.com/HotSprings/Oasis/2376)
Pat's Look at Multiple Sclerosis This Way:
Pat's personal site about the relationship between MS and food.
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Peter Anderson's Ride Through China:
This is Peter's page, about his effort to ride through China with
the MS Society of Victoria. The difference is that unlike the others on a bicycle, Peter will be in a wheelchair. Peter is attempting to raise the funds. Check out his site. The navigation requires a bit of "exploration" and JavaScript must be enabled.
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Poems for Peace & Strength:
An MSer contributing verse to the cause (w3.nai.net/~merlindl/home.htm)
Rachel's Multiple Sclerosis Links (members.aye.net/~rachael/MS.html)
Robert Tusler (www.netcomuk.co.uk/~rtusler/rtindex.html)
Sunshine
and Moonlight - A Journey with Multiple Sclerosis:
A blog by Kimberly A. Fabrizio, the thoughts and musings are personal
and generously shared.
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Sylvie's Living With MS (www.livingwithms.co.uk)
Trevor Frew:
This is Trevor's home page. He also prepares and hosts the
People with MS Page. (www.tip.net.au/~tfrew)
Multiple Sclerosis Pages On
James S. Huggins' Refrigerator Door
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The small circle indicates that the site has linked back to these Multiple Sclerosis Pages. The circle links to the page that links back to my site.
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This site was a
Medinex
Certified Health Site and subscribed to the
Medinex Code of Ethics.
[NB: These links point to an archive of the actual page which is no longer
available. The archive is hosted by the
Internet Archive Wayback Machine.
The assets of Medinex were sold in a Chapter 11 bankruptcy sale in March 2003.
The future of the Medinex certification and code of ethics program is uncertain
at this time but it is unlikely to continue. I maintain this information for
reference.]
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I am not a licensed or trained health care provider. I'm just a guy who
cares (bunches) about Multiple Sclerosis and who spends too much time on the
net. I provide the medical information on this website for educational and
informational purposes only. It is not a substitute for a health care provider's
care and consultation. Please consult your health care provider about any
opinions or recommendations with respect to your own symptoms and conditions.
Any treatment or nutritional product mentioned on this site is not intended or
claimed to diagnose, treat, cure or prevent any disease. Please
advise me of any errors or omissions you
detect. I receive no funds from any medical products companies. And, I fully
disclose all other product affiliations on the Disclaimers,
Copyrights and Other Legal Stuff
page on this site. |
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