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Multiple Sclerosis (MS)

Personal Stories

This section lists personal websites. These websites feature information about the webmaster's personal story of Multiple Sclerosis. Most of the webmasters are MSers. Some are caregivers (carers) to someone with Multiple Sclerosis. Some are doctors specializing in Multiple Sclerosis. Most sites also include some links to other Multiple Sclerosis resources. Many also include other additional information (e.g., motivational and inspirational stories, aphorisms related to Multiple Sclerosis, Multiple Sclerosis graphics, etc.)

Also check the general links page. Some of the larger personal pages are listed there.

Angela Pittman-Smith: A volunteer with MedSupport FSF International.   ««»»

Anne Cowles, Violinist: This website centers on Anne's musical endeavors, but touches on her struggle with MS as well. Anne finds that her love for music inspires her adapt to the challenges created by the illness - for example, letting go of some complicated live solo work and joining bands, recording CD's. "It's a constant process of struggling, letting go, grieving, allowing new ideas to emerge, and allowing my passion for those ideas to overtake me and keep me going." ««»»

Betty's House - Life After MS: Betty Iams tells her own story, and tells of the holistic management program she developed to address her MS.  ««»» 

Brejcha Personal and disAbility Resource Site: A site with lots of disability resources and a separate MS page.   ««»»

Brian's Home Page: Includes an "almost live" picture of Nashville and a nice set of MS links.   ««»»

Bugs, Bikes and Brains: A blog by Shauna MacKinnon ... Diagnosed with MS in Jan.1998; On Avonex since Sep.1999;. Couch potato until Mar.2006; . Took up bicycling...wheeeeee!  ««»»

Butler's Haven: Recently updated with information about the move to California. ««»»

Caneman2: Multiple Sclerosis, Cajuns and canes.   ««»»  

Carolyn Cherry Ross Zimmer's Multiple Sclerosis Links  ««»»

Catherine W. Britell, MD: A doctor with a special interest in Multiple Sclerosis. ««»»

Christopher Baffer: Proclaiming "I'm not dead yet!", the page offers personal information on survival. ««»»

Coping and Prevailing with Multiple Sclerosis and Other Life Struggles: Features Thomas Bayuk's book.   ««»»

CuteDog's Doggoned Home Page (Patsy Garbadeen): Patsy passed away on 19.Dec.2000. She was well known on the MS–Quads email list. ««»»

Diana Cornwell: A new personal site, with an MS section.   ««»» 

Diane in Tennessee: A lovely personal site.   ««»» 

Donna's Journey: Donna's personal story. Donna also started the not-for-profit organization MS With Attitude Association of Alberta.  ««»» 

Dudley Delany: Edgar Cayce's MS Treatment Yahoo! Group: A message board for Cayce's treatment.   ««»»

Espirit's MS Page: A very lovely personal site.   ««»»

Eva Marsh: Eva, who first experienced the symptoms at the age of 8, is the author of Black Patent Shoes - Dancing With MS a metaphor for the steps in self healing and recovery. She also speaks on this topic.  ««»»

Facing the Dragon: Kathleen Hall's personal page   ««»»)

Flora Ayers, In Memory Of: A tribute site to a special mother. ««»»   

Gloria's MS Journey  ««»»   

Homer's MS Blog: Homer is from Greece and has been suffering from MS for 10 years. Now, after many adventures he is almost symptom free. His blog also links to his site.  ««»»   

Hope is the Last to Die – MS & Me: Bob's site about his MS. It includes many links to MS sites and also links to prayer request sites.  ««»»   

Inspiration for Peace and Strength: David Leonardo's site features inspirational thoughts and stories to give hope and determination to the hurting. Includes information on his new book. ««»»

Irish Multiple Sclerosis Net Guide: Edwina has this site, not just for the Irish, but for everyone with MS. ««»» 

Jen's M. S. Page: A personal site with resources, tips, and some uplifting thoughts. ««»»   

Jill's Recovery Page  ««»»

JNJ: Janey Roberts: Janey posts on the MS–Quads email list. ««»»

Karen's Book About Multiple Sclerosis: Telling her story and gathering others' into a new book.   ««»»

Karen G. Stone: Awakening to Disability: In her book, Awakening to Disability, Karen (a disability activist with the Albuquerque Journal) tells a very human story about breaking barriers.   ««»»

Kay and Randy's Universe: Some beautiful GIFs.   ««»»

Kemp's Pad: A minister and MSer.  (members.aol.com/jwkmoe)

Ken's Multiple Sclerosis Info Site (www.dcr.net/~khoward)

KnowMS.com: A place to reach out. A place to share. A place to know. An online community of people with multiple sclerosis dedicated to sharing personal stories and experiences.   ««»»

LilAngel's Piece of Heaven: An MSer with a deeply Christian website.  (members.tripod.com/~Cherubikins/index.html)

Living With MS: Robbie Putnam's site about herself, her family and her MS. (livingwithms.homestead.com/welcome.html)

Mainly Cats: Originally mainly about cats; now much more, including Multiple Sclerosis  (www.geocities.com/Heartland/Meadows/4783)

Marlii's Maelstrom  (www.geocities.com/HotSprings/Spa/7750)

MSC2C Cycle Project: Ralph Allison's site promoting a bike ride. Three young people, one of whom suffers from Multiple Sclerosis (MS) will attempt to cycle 140 miles, between Whitehaven and Sunderland, in three days. The site includes a running total of the pledges. ««»»

MS My Way  (www.oznet.com/msmyway)

MS Web People: A personal site and excellent MS web forum by Peter Anderson. It also uses some of the most interesting presentation techniques of any I've encountered.  ««»»

Multiple Sclerosis Alternative Remedies: Dianne's site focuses on her Bee Venom Therapy and includes links.  (www.frontiernet.net/~magjr/home.html)

Multiple Sclerosis as a Spiritual Guide: Includes both Danish and English versions. Focuses on holistic therapy.  (home12.inet.tele.dk/c_kolsen)

MyMSViews: Oishda's Multiple Sclerosis Resource Page: Oishda has MS. The site includes personal information about her, links, articles and more.   ««»»

Nansi's Nook: A personal story of a renewed life.  (www.geocities.com/Heartland/Forest/1626)

Our Refuge: Stories and meditations for MSers  (www.geocities.com/HotSprings/Oasis/2376)

Pat's Look at Multiple Sclerosis This Way: Pat's personal site about the relationship between MS and food. ««»»

Peter Anderson's Ride Through China: This is Peter's page, about his effort to ride through China with the MS Society of Victoria. The difference is that unlike the others on a bicycle, Peter will be in a wheelchair. Peter is attempting to raise the funds. Check out his site. The navigation requires a bit of "exploration" and JavaScript must be enabled. ««»»

Poems for Peace & Strength: An MSer contributing verse to the cause  (w3.nai.net/~merlindl/home.htm)

Rachel's Multiple Sclerosis Links (members.aye.net/~rachael/MS.html)

Robert Tusler  (www.netcomuk.co.uk/~rtusler/rtindex.html)

Sunshine and Moonlight - A Journey with Multiple Sclerosis: A blog by Kimberly A. Fabrizio, the thoughts and musings are personal and generously shared.  ««»»

Sylvie's Living With MS (www.livingwithms.co.uk)

Trevor Frew: This is Trevor's home page. He also prepares and hosts the People with MS Page.  (www.tip.net.au/~tfrew) 

Multiple Sclerosis Pages On My Site

Multiple Sclerosis and My Life: Information about how Multiple Sclerosis has affected me and why I decided to create these pages.  ««»»

Frequently Asked Questions (FAQ)  ««»»

Multiple Sclerosis Links and Resources: A boatload of links. Wazillions of links. And a few more. But . . . even though there are many links here, these are not all the links. Be sure to check the other sections for the specialty links.  ««»»

Local and Non-US Organizations: Includes state by state listings of local organizations, including the chapters of the National Multiple Sclerosis Society.  ««»»

Chat, Forums and eMail Discussion Groups  ««»»

Commercial Sites and Commercial Journals  ««»»

General Medical Sites and Other Resources: Not specifically related to Multiple Sclerosis, but offering general medical information. Many feature search engines to locate Multiple Sclerosis information or Multiple Sclerosis sections within their site.  ««»»

Personal Stories: Personal websites featuring the webmaster's personal experience with Multiple Sclerosis. Most also include some links to other Multiple Sclerosis resources.  ««»»

Books: Books about Multiple Sclerosis (like you really needed that description).  ««»»

Who Are the People With Multiple Sclerosis?: A moving essay by Virginia Sanchez (used with permission).  ««»»

Multiple Sclerosis and Children: Special information about MS in children and why I hope to honor them with my site. ««»»

Guest Article: Stem Cells Showing Great Promise in Remyelinization: A guest article by Daryl Clayton Kennedy.  ««»»

A Measure of Time - My Life With MS: This book by Lauren Singer is available directly from the author. This page on my site provides a tiny amount of publicity for this book. By the way, her dog is named Fred Huggins.   ««»»  

As for Tomorrow I Cannot Say: 33 Years with Multiple Sclerosis: I review this book by Diana Neutze.  ««»»  

Life on Cripple Creek - Essays on Living with Multiple Sclerosis: I review this book by Dean Kramer.  ««»»  

My Story: A Photographic Essay on Life with Multiple Sclerosis: I review this book by Amelia Davis.  ««»»  

When the Road Turns - Inspirational Stories About People with MS: I review this book by Margot Russell.  ««»»  

If You Would Like to Link to My Multiple Sclerosis Pages

Many webmasters only want people to link to the "primary" page of a website. I have a different view.

Because of the importance of Multiple Sclerosis to me I actually encourage other Multiple Sclerosis sites to link directly to my Multiple Sclerosis pages. Click here to find out my special requests for linking to my Multiple Sclerosis pages.

Awards

The following awards were awarded specifically for the
James S. Huggins' Refrigerator Door: Multiple Sclerosis Pages.

Outstanding Website Award   1999  sponsored by Disability Network	Outstanding Website Award 1999 awarded 25.Oct.1999 by the Disability Network

	Editor's Choice Award awarded 26.Oct.1999 by HealingWell.com

	Facing Challenge Award awarded 30.Oct.1999 by Facing Challenge Award

	Helping Hands Award awarded 15.Nov.1999 by Living With Multiple Sclerosis

Directory Links

This section of my site (James S. Huggins' Refrigerator Door: Multiple Sclerosis Pages), is listed in the following directories.

	Good Health Directory linked 20.Mar.2000

	HealingWell.com linked 26.Oct.1999 (see also Editor's Choice Award above)

	Health-Library linked 21.Aug.2000

	HealthLinks linked 02.Feb.2001

	MedExplorer linked 02.Feb.2001

	This site complies with the HONcode standard for trustworthy health information of the Health On the Net Foundation: you can verify that here.

	This site was a Medinex Certified Health Site and subscribed to the Medinex Code of Ethics. [NB: The above links point to an archive previous page. hosted by the Internet Archive Wayback Machine. The assets of Medinex were sold in a Chapter 11 bankruptcy sale in March 2003. The site is no longer functional.]