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Multiple Sclerosis
This page presents links to Multiple Sclerosis websites in two sections:
-
The Big Guys: the really, really big, major organizations and sites
-
Multiple Sclerosis Websites: the rest.
The Big Guys
 International Federation of Multiple Sclerosis Societies (World of Multiple Sclerosis):
The International Federation of Multiple Sclerosis Societies (IFMSS)
is a non-governmental, non-profit making voluntary health agency and umbrella organization for the 36 established national Multiple Sclerosis member societies throughout the world. It operates the World of Multiple Sclerosis on the internet to serve as a clearinghouse for educational and scientific information. The site includes the ability to subscribe to the WOMS (World of Multiple Sclerosis) Update Service.
««»»
WOMS:
WOMS (the World of Multiple Sclerosis Update Service) is a Majordomo based, announcement list owned and run by the International Federation of Multiple Sclerosis Societies. The site provides a web based subscription form off the
main page (labeled "Keep Up To Date"). You'll receive confirmation by email. You must respond to this confirmation email to be entered on the list.
[NB: You may also subscribe by sending an email to Majordomo@mail.nsms.net with the command "subscribe woms" in the body of the message.]
««»»
International MS Support Foundation:
Claiming to be "The #1 Multiple Sclerosis Website on the Internet!", the International MS Support Foundation is a not-for-profit organization for people with Multiple Sclerosis and their
families. Founded by
Jean Sumption, IMSSF is unique in that it was founded by and is run and directed by people with Multiple Sclerosis.
««»»
Autoimmune-Research:
Autoimmune-Research is a Majordomo based, moderated, email discussion list owned and run by the International MS Support Foundation. The site provides a web based subscription form. When you click on "Subscribe MSNEWS" you go to the
MajorCool list manager. Enter your email address, click on "all" lists, select QuickView Mode, and click "Go". You'll see all lists hosted on the server. (MSNEWS is described below. MS-RoadRunner is a paid subscription list for members only.) Click on "Autoimmune-Research". Then, on the next page, click "Apply". You'll receive confirmation by email.
[NB: even though the URL says "listserv" this is a Majordomo based list. You may also subscribe by sending an email to Majordomo@window-seat.com with the command "subscribe autoimmune-research" in the body of the message.]
««»»
MSNEWS:
MSNEWS is a Majordomo based, moderated, email discussion list owned and run by the International MS Support Foundation. The site provides a web based subscription form. When you click on "Subscribe MSNEWS" you go to the MajorCool list manager. Enter
your email address, click on "all" lists, select QuickView Mode, and click "Go". You'll see all lists hosted on the server. (Autoimmune-Research is described above. MS-RoadRunner is a paid subscription list for members only.) Click on "MSNEWS". Then, on the next page, click "Apply". You'll receive confirmation by email.
[NB: even though the URL says "listserv" this is a Majordomo based list. You may also subscribe by sending an email to Majordomo@window-seat.com with the command "subscribe msnews" in the body of the message.]
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Multiple Sclerosis Foundation, Inc.:
Founded in 1986, the Multiple Sclerosis Foundation claims to be the oldest national support organization that focuses on both complementary and conventional health care options. Includes a
quarterly newsletter, MSFocus.
««»»
Monthly Newsletter:
A monthly email newsletter. To sign up, see the sign up form on this page, and on many other pages of the site.
««»»
MSFocus:
The quarterly (printed, snail-mailed) newsletter of the the Multiple Sclerosis Foundation. Subscriptions are free.
««»»
Support Group Newsletter:
The quarterly (printed, snail-mailed) publication of the Multiple Sclerosis Foundation is free.
««»»
Multiple Sclerosis Association of America:
The Multiple Sclerosis Association of America (MSAA) is a comprehensive, not-for-profit, charitable service agency that helps people, their friends, their families, and society in
general to address the day-to-day needs of those with MS. It also conceives, builds, and maintains barrier-free housing complexes open to all disabled people and is involved in programs and research that affect all with neurological disorders.
««»»
National Multiple Sclerosis Society:
The big guy in the United States. Includes over 140 local chapters and branches. The chapters of the National Multiple Sclerosis Society like to point out that it is the only national
voluntary Multiple Sclerosis organization that meets the standards of all major agencies that rate not-for-profit groups. (Click here to find out more about this particular claim.)
««»»
Multiple Sclerosis Websites
AbilityHub.com:
Created and maintained by Mr. Dan J. Gilman, this site features information on adaptive equipment and alternative methods for accessing computers. Mr. Gilman has lived with a paralysis disability since a C4-5 spinal cord injury
in 1972. While not, per se, an MS site, this information will be useful to all MSers on the net.
««»»
About.com Neuroscience Multiple Sclerosis Page:
One of the Multiple Sclerosis pages on the About.com website.
««»»
All About Multiple Sclerosis:
Formerly Laetoli Man's Multiple Sclerosis Pages. The site aims to provide accurate medical information about Multiple Sclerosis from the perspective of someone who has the disease. It includes a
lengthy description of MS, an archive of news stories, an encyclopedia/glossary of terminology and a large links section containing hundreds of commented and rated links. In addition, it has a list of famous people living with MS, poems and essays by people with MS and some downloadable shareware programs to raise money for research. You can also read the author's own MS story.
««»»
allHealth.com Multiple Sclerosis Page:
Part of the allHealth.com website. This is a commercial website providing health information.
««»»
allHealth.com Brain & Nerves Page:
This page is the "parent" of the Multiple Sclerosis page. Links on this page refer to other neurological pages within the site that may be of interest to Multiple Sclerosis surfers.
««»»
American Academy of Neurology: Public MS Page:
This embarrassingly small page provides precious little information and only a few links to patient support groups and news releases.
««»»
Andy's Homepage:
Maintained by Andy Barnes, this site features information about Multiple Sclerosis, including lots and lots of links. Andy Barnes is also responsible for The Multiple Sclerosis Information Exchange email list.
««»»
 The Multiple Sclerosis Information Exchange:
A discussion list for Multiple Sclerosis. To subscribe, use the command "subscribe" in the text of the message.
««»»
Annie's Multiple Sclerosis Attic:
The site includes links to medications and support, poetry, a message board, and a short version of her own journal to diagnosis.
(27.Mar.2002: appears not recently updated)
««»»
Ask NOAH About: Multiple Sclerosis:
The Multiple Sclerosis section of NOAH: New York Online Access to Health, a project of City University of New York.
««»»
aylor College of Medicine, Department of Neurology, Multiple Sclerosis Research:
Information on the current research programs at the college.
««»»
Best of M.S.:
A Delphi forum for people with multiple sclerosis. They have been together since the classic Prodigy and have regrouped at Delphi to continue their mutual encouragement and support of one another.
««»»
Betaseron Foundation:
An independent, not-for-profit foundation, providing Betaseron (Interferon beta-1b) to financially eligible uninsured and underinsured Multiple Sclerosis patients. Berlex Laboratories, makers of Betaseron, created The Betaseron
Foundation in 1994. Berlex provides funds for administration of the Foundation based on its approval of an annual budget for the Foundation's operations. In addition to funding the Foundation, Berlex provides Betaseron® for approved program participants. One interesting aspect of their website is the complete absence of internet contact information: no email, no feedback form. The only way to contact them is phone and snail mail.
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BJ's World:
Thirty-plus years with Multiple Sclerosis. Excellent links to Multiple Sclerosis plus extensive links to other medical resources on a large variety of topics.
««»»
BMapes1 — Living With Multiple Sclerosis:
Multiple Sclerosis information and links. The "Friends, Support & Info" page has a number of good links.
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Bob Miller's Multiple Sclerosis Site:
In addition to personal information and some general Multiple Sclerosis links, this site includes scanned copies of articles relating to chlamydia pneumoniae.
««»»
MS Cause Discovered:
Bob Miller's personal page about the role of chlamydia pneumoniae with Multiple Sclerosis.
««»»
Annals of Neurology
(V46N01, Jul.1999, pp 4-5)
,
"
Chlamydia: A Role for Multiple Sclerosis or More Confusion":
An editorial in the Annals of Neurology (American Neurological Association) about the research regarding chlamydia pneumoniae. This page (and the ones
it links to) present JPG images of the scanned article. These are hosted on Bob Miller's Multiple Sclerosis site.
««»»
Annals of Neurology
(V46N01, Jul.1999, pp 6-14)
,
"
Chlamydia pneumoniae Infection of the Central Nervous System in Multiple Sclerosis":
The (!) article about chlamydia pneumoniae research by Dr. Sriram of Vanderbilt University. This page (and the ones it links to)
present JPG images of the scanned article. These are hosted on Bob Miller's Multiple Sclerosis site.
««»»
Neurology
(V50N02, Feb.1998, pp 571-572)
,
"
Multiple sclerosis associated with Chlamydia pneumoniae infection of the CNS":
The preliminary disclosure about the chlamydia pneumoniae link to Multiple Sclerosis by Dr. Sriram of Vanderbilt University.
Treatment with anti-bacterials improved his condition and led to subsequent research. This page (and the ones it links to) present JPG images of the scanned article. These are hosted on Bob Miller's Multiple Sclerosis site.
««»»
Boston Cure Project:
The Boston Cure Project's mission is to cure Multiple Sclerosis by finding the cause. Curing means preventing the disability caused by MS, permanently stopping the progress of MS, and repairing the damage already caused
in patients with MS. The logical route to a cure will come from determining the cause or causes of MS. The speed and effectiveness of finding a cure are much more important than other outcomes such as growth, wealth creation, and publicity (for the organization or any individuals involved with it).
««»»
Brejcha Personal and disAbility Resource Site:
A site with lots of disability resources and a separate
MS page.
««»»
Brejcha's Disability Resources Page
««»»
Brejcha's Multiple Sclerosis Page
««»»
Center for Neurologic Study:
The Center for Neurologic Study (CNS) is a not-for-profit organization dedicated to research and treatment of neurological diseases. The CNS library (listed as "File Cabinet") includes articles on Multiple
Sclerosis. The site also lists trial opportunities.
[NB: As of 24.Oct.1999, many of the pages on this site reflect very old change dates, some over a year old.]
««»»
Claude the Cartoon Pooch with Multiple Sclerosis:
John Mythen is the creator of Claude the cartoon dog. When John was diagnosed with Multiple Sclerosis, he gave MS to Claude (who is now the first and only
cartoon pooch with Multiple Sclerosis). Day in, day out, they now battle Multiple Sclerosis together. At this site, you will encounter cartoons full of brilliant color, posters, information on John Mythen's literature, his services to the Multiple Sclerosis Societies, a free screen saver, free postcards and more.
««»»
Clinical Trials: Multiple Sclerosis:
This is a list for Multiple Sclerosis from the CenterWatch Clinical Trials Listing Service for Multiple Sclerosis. CenterWatch provides a wealth of information related
to clinical trials, such as a listing of more than 35,000 industry- and government-sponsored clinical trials as well as new drug therapies recently approved by the FDA. The site is designed to be a resource both for patients interested in participating in clinical trials and for research professionals.
««»»
Colorado Health Site Multiple Sclerosis Center:
Colorado Health Site is a not-for-profit corporation formed in 1995 to provide electronic access to factual and statistical information,
support services, medical resources, and related health care information for persons with chronic medical conditions and for other users. This is their Multiple Sclerosis section. Includes a newsletter.
««»»
What's New at Colorado Health Site:
The email newsletter of the Colorado Health Net.
««»»
Comprehensive MS Center at Washington University Medical Center and Barnes-Jewish Hospital in St. Louis Missouri
««»»
Computer Literate Advocates for Multiple Sclerosis (CLAMS):
This organization is comprised of people who are provisionally diagnosed or diagnosed with Multiple Sclerosis. CLAMS strives to bring
those with Multiple Sclerosis out of isolation and into computer communications for support, companionship and information with others sharing this disease. Includes a ListBot powered mailing list and a Message Board.
««»»
Consortium of Multiple Sclerosis Centers:
CMSC's vision is to be the preeminent organization of Multiple Sclerosis health care providers improving the lives of those affected by Multiple Sclerosis. Includes the
North American Research Consortium on Multiple Sclerosis (NARCOMS). CMSC is supported in part by grants from the drug companies.
««»»
International Journal of MS Care:
This is the official journal of (1) the Consortium of Multiple Sclerosis Centers and (2) Rehabilitation in Multiple Sclerosis.
Subscribers can view the articles online. Nonsubscribers are out of luck; only a table of contents is available to the visitor.
««»»
Cure Multiple Sclerosis Web Site:
This site is coordinating research into MS using home computers to search for molecules that might cure MS
««»»
David's Campath Story:
David has received Campath-1H treatment for his MS. This site provides information as well as links to other MS resources.
««»»
DIRECT-MS:
A Canadian, federally registered charity, founded in 1998 by families affected with Multiple Sclerosis. The main goal is to fund research which directly tests potential causes of MS. The charity believes that the research efforts of
the large charities (e.g., Multiple Sclerosis Society of Canada and the National Multiple Sclerosis Society) are doing little to research the cause of Multiple Sclerosis. The first research initiative will test the theory that dietary factors play a major role in onset and progression. The site (maintained by Ashton Embry) features a number of essays and links on this principal topic. (DIRECT-MS stands for
DI
et
RE
search into the
C
ause and
T
reatment of Multiple Sclerosis.)
««»»
Disability Key:
The creator of this site is a a long time MSer and Human Resource professional. The site is dedicated to helping people with disabilities help themselves regain their dignity and respect and access the medical and disability
insurance financial safety net through general knowledge, targeted how-to's and disease specific-examples.
««»»
drkoop.com Multiple Sclerosis Page:
Part of the drkoop.com commercial website (from a company led by Dr. C. Everett Koop, former U.S. Surgeon General). It is a public company. Shares are
traded on the NASDAQ exchange. Free registration is required.
««»»
Eastern Paralyzed Veterans Association (EPVA) Multiple Sclerosis Quarterly Report
««»»
Endeavor Games:
Games for people with Physical Disabilities, presented by The Sports Group.
««»»
Family Caregiver Alliance Fact Sheet: Multiple Sclerosis:
An excellent overview of the disease.
««»»
Firelady's:
This site is dedicated to Multiple Sclerosis and includes a wealth of scientific and research links.
««»»
Happy Life for MS People that Want It:
This site's motto is "Life is what we make it, not what MS makes of us." The site features information on how to cope with and thrive through Multiple Sclerosis.
««»»
Hatcher's Coping with Multiple Sclerosis:
Ellen K. Hatcher's personal page with information on Multiple Sclerosis. This site has a great spiritual and motivational approach. Includes a daily motivational email newsletter and a support forum (MSFriends).
««»»
Daily Motivational Mailing:
A daily email by Ellen K. Hatcher. To subscribe, just ask.
««»»
MSfriends:
A forum for those people with Multiple Sclerosis to exchange information and emotional support. Run by Ellen K. Hatcher. Runs on ONElist.
««»»
healthfinder MS Links:
This is the result of a search on the healthfinder® site for "multiple sclerosis".
««»»
healthfinder:
healthfinder® is a service of the U. S. Department of Health and Human Services. It is a "gateway" web site that links to a broad range of consumer health and human services information resources produced by the federal
government and its many partner organizations. It offers information on (1) Hot Topics, (2) News, (3) Smart [Health] Choices, (4) Tools [additional links], (5) Personal Health, (6) a general search engine, and more.
««»»
Hereditary Biochemical Multiple Sclerosis:
This website, written by Roberta Rooney (a co-investigator on the project) presents information on research into a possible new subtype of Multiple Sclerosis. It also has
other Multiple Sclerosis information and links. To find all the other information, click on the text that says "Hereditary Biochemical MS Information" at the lower left of this page.
««»»
Image: The Nature of Multiple Sclerosis:
This graphic page from the Mayo Clinic shows "normal" and "diseased" nerves. Graphically depicts
damaged myelin sheaths.
««»»
Infosci's Frequently Asked Questions (FAQ) Concerning Multiple Sclerosis:
An excellent compendium of information drawn from the MSLIST and the newsgroup
alt.support.mult-sclerosis.
««»»
International Federation of Multiple Sclerosis Societies (World of Multiple Sclerosis):
See The Big Guys at the top of this page.
Jooly's Joint:
Jooly's Joint helps put People With Multiple Sclerosis (PWMS) in contact with each other by posting ads for Webpals. (Note the domain name: MSWebpals.org.) The site includes about 1,000 people who wish to establish email connections.
««»»
Jooly's Joint Email Lists:
Part of the Jooly's Joint website, these email lists include lists for (1) general postings, (2) parents, (3) newly diagnosed, (4) Christians, (5) gay men and lesbians, (6) PWMS at work, (7) children
(moderated list) and (8) humor.
««»»
Jooly's New to MS Forum:
A forum for people newly diagnosed with MS or going through the diagnostic process.
««»»
Care Pals
A special part of Jooly's Joint for people who do not have Multiple Sclerosis but who have a friend or relative who does and wish to advertise for a Webpal.
««»»
Knowledge Weavers: Multiple Sclerosis:
The Knowledge Weavers website is part of the Spencer S. Eccles Health Science Library at the University of Utah. Their mission is to create innovative multimedia resources
to support health sciences education. This is their Multiple Sclerosis page.
««»»
LaVonne's Flight of Fancy:
Includes a large links page with Multiple Sclerosis links, and other "related" links as well (e.g., medicine, government).
««»»
Life Extension Foundation Multiple Sclerosis Page:
The Multiple Sclerosis page of an organization dedicated to slowing and reversing aging. The organization and website feature "alternative"
medicine and a decidedly anti-establishment bent.
««»»
Mary Ryan's MS Awareness Pin:
Mary Ryan has had Multiple Sclerosis for more than 10 years, She designed a MS Awareness Ribbon Pin to promote MS Awareness and help raise funds for MS programs. The Greater
Delaware Valley Chapter of the National Multiple Sclerosis Society (NMSS) has adopted that pin. These pins have been sold all over the USA and England and were used as part of the state of Pennsylvania MS Awareness Month. The pin comes in either silver or gold and sells for $5. Mary voluntarily handles all sales, shipping, postage and promotion from her home office. To order an MS Awareness Ribbon Pin, please email Mary at MRyan10@Home.com or call her at 610.352.3631. Help Mary make a difference for all those
with multiple sclerosis!
««»»
Greater Delaware Valley Chapter of the NMSS: News Bulletin Regarding Ryan's MS Awareness Pin
««»»
Mayo Clinic Health Oasis:
Sponsored by the Mayo Foundation for Medical Education and Research, this is an excellent general medical site. Includes a search engine.
««»»
Housecall:
The Mayo Foundation for Medical Education and Research email newsletter.
««»»
Multiple Sclerosis Page
««»»
Meaning in Life:
Current research in multiple sclerosis focuses on medical interventions. MIL's research focuses on the holistic impact of the illness — mind, body, and spirit. This holistic approach places special emphasis on how people with Multiple Sclerosis
cope with the illness in their activities of daily living, social relationships, and religious orientation. Results are scheduled to be posted periodically on MIL's website in a Newsletter format.
««»»
MedSupport FSF International:
The FSF stands for Friends Supporting Friends. It is dedicated to educating and assisting persons with disabilities, their caregivers and their families. Part of the site is dedicated to Multiple
Sclerosis and includes forums, a newsletter and web links.
««»»
MedSupport FSF International Newsletter:
The on-the-web newsletter. Includes a plain-text version and archives.
««»»
MedSupport FSF International Multiple Sclerosis Resources:
This is the links page. It took me long enough to find it so I thought I'd make it easier for you.
««»»
MS Awareness Foundation:
Diagnosed in 1986, Nancy Yeager founded the MS Awareness Foundation in 1997. It is a recognized 501c organization. The Foundation promotes self-awareness and education about the health and lifestyle challenges
facing MSer. Nancy noticed that there were no specific exercise programs for MSers and created an exercise video designed specifically for those with MS: Yes, You Can!
««»»
MS Crossroads:
This site belongs to Aapo Halko, a Helsinki mathematician with Multiple Sclerosis. The site has many excellent links and is an excellent resource.
««»»
MS Hive:
Information on alternative and traditional treatments for Multiple Sclerosis. Includes a chat room.
««»»
MS Hive Chat:
A chat room related to the MS Hive.
««»»
MS Less Stress (dot com):
MS Less Stress (MSLessStress.com) is a site by Darcy. Her site aims to "make less of the stress that comes with MS). A varied site, she offers information about MS, relaxation information as well as more information on pets, gardens, food, music, books, and even a gracious link back to me. In addition, she has a newsletter you can sign up to receive.
««»»
2006-04-08
MS Means:
MS Means Multiple Sclerosis. This Canadian site is a relatively new site on the net and an excellent source of MS information. Created by Carolyn Marshall, it provides a large quantity of information as well as numerous links to other resources.
««»»
MS MounTain:
This site by two MSers (Michael and Tee), includes a wealth of great information, including links, news, an MS FAQ and biographical information about both Michael and Tee.
««»»
MS Universe:
A South African support group for people with MS and their families and care givers.
««»»
MS With Attitude Association of Alberta:
A not-for-profit organization begun by Donna. Donna also has her own personal webpage devoted to MS.
««»»
MS'keteers: Multiple Sclerosis Support and Peer Sharing:
Created by MSers for MSers with many excellent links.
««»»
MSers Online:
Home to four email lists: 1_for_Caregivers, MSers_Online, MSers_Online_Fun and MSersSupportingMSers. Also includes other MS info and links.
««»»
MSWorld, Inc.:
MSWorld, Inc. is a not-for-profit organization. It hosts a website where people with Multiple Sclerosis, their families and friends can find information and community support. MSWorld offers a live Multiple Sclerosis chat forum,
member email exchange service, Multiple Sclerosis library resources, technical support, an award winning online Multiple Sclerosis web magazine (MSWorld Reality Bytes), message boards, an email newsletter, and more.
««»»
MSWorld Caregivers E-mail Exchange Service (CARE):
An email group for those who take care of or care about someone who has been diagnosed with Multiple Sclerosis.
««»»
MSWorld E-mail Exchange Service (ESS):
An email group for those diagnosed with Multiple Sclerosis to write others with MS.
««»»
MSWorld LivingMS:
An award winning online Multiple Sclerosis web magazine sponsored by MSWorld.
««»»
MSWorld Message Boards:
A variety of message boards all related to Multiple Sclerosis.
««»»
Multiple Sclerosis Central Support:
Multiple Sclerosis Central Support exists to provide pertinent and veritable information to their membership and to offer features where their members can participate in an open and sincere
manner. They do this through their support forum. In addition to their zine (Multiple Sclerosis Central's Zine), they also have a large list of Multiple Sclerosis websites.
««»»
MS Central Support:
The web based forum (Delphi Forums) moderated by Multiple Sclerosis Central.
««»»
Multiple Sclerosis Clinical Research Group:
Affiliated with the Vancouver Hospital and Health Sciences Centre/University of British Columbia Multiple Sclerosis Clinic. The clinic provides both
comprehensive health care and the opportunity for persons with MS to participate in clinical research programs.
[NB: As of 21.Nov.1999 this page is "locked down". Correspondence with the ISP indicates that they exceeded their bandwidth allotment and will reset on the 28th of each month.]
««»»
Multiple Sclerosis People Helping People, Inc.:
Multiple Sclerosis People Helping People, Inc (MSPHP) is a not-for-profit organization whose sole purpose is to create and operate independent living opportunities for those
challenged by Multiple Sclerosis.
««»»
Multiple Sclerosis Quarterly Report:
MSQR is a joint publication of the Eastern Paralyzed Veterans Association and the North American Research Consortium on MS.
««»»
Multiple Sclerosis Resource Center at HealingWell.com:
This is the Multiple Sclerosis section at HealingWell.com. The idea began in 1996 when the webmaster created pages about his chronic illnesses. In
1998 these pages were merged with additional content on other diseases and disorders. Volunteers with chronic illnesses contribute their time and energy to monitoring and updating our pages on diseases and disorders.
««»»
Multiple Sclerosis Resource Centre (UK):
The website for the UK Multiple Sclerosis Resource Centre. Includes their 24 hour Telephone Counseling Service.
««»»
Multiple Sclerosis Specialty Clinic of New Mexico:
This website is sponsored by the Multiple Sclerosis Specialty Clinic of New Mexico, part of the University of New Mexico Health Sciences Center Department
of Neurology.
[NB: As of 21.Nov.1999, I have been unable to confirm that this site is still active. The last newsletter is from Spring 1999, all pages are undated and emails to the webmaster are unanswered.]
««»»)
Multiple Sclerosis Sucks:
A large website
that contains lots of information about the disease
««»»
Multiple Sclerosis: The Immune System's Terrible Mistake:
This article was published in the Harvard Mahoney Neuroscience Institute Letter On
the Brain, in the Fall of 1996.
««»»
Myelin Project:
The Myelin Project aims to accelerate research on myelin repair. Myelin is the white matter insulating the nerves. It can be destroyed by both hereditary disorders and by acquired diseases such as Multiple Sclerosis.
««»»
Myelin Repair Foundation:
The Myelin Repair Foundation was formed to develop myelin repair treatments and leverage recent myelin related scientific breakthroughs. Myelin repair can serve as a "band-aid", improving the quality of life, until a cure can be found.
««»»
North American Research Consortium on Multiple Sclerosis (NARCOMS):
The Consortium of MS Centers (CMSC) initiated the North American Research Consortium on MS (NARCOMS) to
facilitate multi-center research in the broad field of Multiple Sclerosis. The first projects include the development of a Patient Registry, a database of Multiple Sclerosis Centers, and a website. CMSC is supported in part by grants from the drug companies.
««»»
National Institutes of Health Multiple Sclerosis Page:
The Medline page at NIH for Multiple Sclerosis.
««»»
Multiple Sclerosis: Hope Through Research:
An excellent, thorough overview document.
««»»
Neurosurgery://On-Call: Multiple Sclerosis Q & A:
Sponsored by The American Association of Neurological Surgeons and Congress of Neurological Surgeons, this is a fairly basic
FAQ page. The site also features a very basic set of Multiple Sclerosis internet links.
««»»
New York Hospital, Cornell Medical Center, Department of Neurology and Neuroscience:
A large site including information on the Multiple Sclerosis
Clinic and the Multiple Sclerosis Research Center.
««»»
Neuroscience (Biosciences) Section of the World Wide Web Virtual Library:
Supported and maintained by the Department of Neurology and Neuroscience at Cornell University Medical
College.
««»»
OzMS - Australian Multiple Sclerosis Community:
A peer support community offering a FAQ, Chat Room, Forum, Gallery and Articles. Operated by Darin Allen, this is a great site, not just for Australians, but for MSers across the globe.
««»»
Pennsylvania Neurological Associates:
This site has two pages of particular interest for Multiple Sclerosis. The publications page offers an online "booklet" (a long and thorough text) about Multiple Sclerosis as well as "copies" of presentations by Kathy Finney, an
MSer and motivational speaker. The links page offers Multiple Sclerosis links.
««»»
People With MS Page:
Prepared and hosted by
Trevor Frew, this organization serves people with Multiple Sclerosis in Canberra, Australia's capital city. The website includes a great post from Cal Clifford.
««»»
Rest Ministries:
A Christian based site dedicated to helping those who live with chronic illness or pain. Includes a free email based monthly support newsletter (And I Will Give You Rest) and a free, devotional email (Chronic Pain
Devotional).
««»»
Chronic Pain Devotional:
This daily, devotional email from Rest Ministries is hosted by Yahoo! Groups. (Scroll down on the page to find it.)
««»»
And I Will Give You Rest:
This monthly Christian based support newsletter from Rest Ministries is available in two forms: (1) a free email based condensed version, and (2) a paid ($15) hardcopy snail-mailed
version.
««»»
Savvy Patients:
Supporting "integrative medicine", combining "the best of both conventional and alternative medicine", this site includes information on Multiple Sclerosis, as well as many other medical conditions, including causes,
prevention, and treatment options as well as links to alternative practitioners and related sites.
««»»
Shop2CureMS.org:
The mission of Shop2CureMS.org is to raise money for the National Multiple
Sclerosis Society while increasing public awareness of this debilitating
disease. It does this by providing online shoppers the ability to generate
donations to the National Multiple Sclerosis Society through their every day
online purchases, without costing them a penny. Shoppers save money at their
favorite online stores such as Amazon, Best Buy, Buy.com, Gap, Old Navy and Toys
R Us by using the coupons and codes on this site while also generating donations
to the National Multiple Sclerosis Society.
««»»
Speakeasier:
Multiple Sclerosis can make speaking difficult. Speakeasier helps alleviate this by funding communication aids for people with Multiple Sclerosis (after professional assessment by speech & language therapists).
««»»
Sports Group:
Host of the Endeavor Games, for people with Physical Disabilities.
««»»
Suite101.com Multiple Sclerosis:
Suite101.com is a site using real people ("Contributing Editors") to find, review and publish links to internet content. This is their Multiple Sclerosis section.
««»»
Join Suite101.com
Joining Suite101.com provides additional benefits. If you join through this link, I get "credit". I use these credits to help
maintain this site.
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Tell-Us-Your-Story.com:
Tell-us-your-story.com a public "underground" discussion forum for people with disabilities (like Multiple Sclerosis) and also people who share their lives. It's a place to share the "disability culture"
and gain insight about living well with a disability.
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This
Is MS:
Begun in late 2003, this site provides the latest news and research and a
community committed to Multiple Sclerosis and the people it affects. An unbiased
site, it receives "no corporate "unrestricted" grants, no big pharma
allegiances, and no ties to any medical hospital". The site "is funded out of
pocket, born out of a desire to combine interests in web communities, personal
experiences with people living with MS, and research skills into an entity that
will help people whose lives have crossed paths with MS in some way". You should
check it out.
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ThJuland's MSers Glen:
Thomas J. Copeland, the webmaster, is also the moderator of MSersForum. The site includes other Multiple Sclerosis information and links, an excellent glossary, tons of medical information and Mr Copeland's
personal story.
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MS is Benign . . . Til:
Thomas J. Copeland's personal story of MS.
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MSersForum:
MSersForum consists of a mailing list, a daily digest, and a web based message board. Free and moderated (by Thomas J. Copeland of ThJuland's MSers Glen), it is open to anyone who is dealing with living and learning
about Multiple Sclerosis.
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Transformations:
Listing itself as "a forum for self-help and recovery", this is an extraordinary, beautiful site. It is a stunning example of what the net can be. The site includes IRC chat areas, message boards, survivors' art, poetry and stories, a webzine,
and a resource list, including Multiple Sclerosis.
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Transformations Chats:
Chat channels include (a) Twelve Steps, (b) SupportGroup, (c) MoreSupport and (d) OpenSupport.
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