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Multiple Sclerosis (MS)

General Medical Sites and Other Resources

American Academy of Neurology: Like the American Neurological Association (see below), this site is not particularly useful for the lay visitor. It is designed and targeted to association members and almost no medical information of any kind is posted. The link to their journal, Neurology, takes you off their site to a special journal site (www.Neurology.org) maintained by Lippincott Williams & Wilkins, the journal publishers. Copies of articles are only available to AAN members and journal subscribers and others willing to pay $20.00 for 24 hour access to one article. Only tables of contents are freely available to the public. There is a small public section on Multiple Sclerosis (see below). I understood (22.Aug.2000) that the site was being redesigned to improve navigation. Maybe they did; but I missed it.  ««»»

American Academy of Neurology: Public MS Page: This embarrassingly small page provides precious little information and only a few links to patient support groups and news releases.  ««»»

American Medical Association: Includes a search function to search the main site and medical journals for Multiple Sclerosis information.   ««»»

American Neurological Association: Of all the professional medical associations linked here, this one has the least useful information for the lay visitor. No medical information of any kind is posted. The link to their journal, Annals of Neurology, takes you off their site to Lippincott Williams & Wilkins, the journal publishers. No copies of articles, not even abstracts or tables of contents, are available.   ««»»

Centers for Medicare and Medicaid Services (CMS): HCFA is now the Centers for Medicare and Medicaid Services (CMS). CMS administers the Medicare, Medicaid and Child Health insurance programs. Includes a search engine to identify Multiple Sclerosis information.   ««»»

ChronicNewsletter: A weekly email newsletter, sent every Monday. Designed to support those who live daily with the chronic pain and fatigue of an autoimmune disease. Content includes  information, tips, poems, a joke or two, but mostly medical information.   ««»»

Disability Rights Activist: This site by Adrienne Barhydt is not updated as frequently as some other sites, but it includes useful links and information regarding disability rights.  ««»»

DrugWatch.com: DrugWatch.com is a comprehensive Web site database featuring extensive information about thousands of different medications and drugs. It includes up-to-date information about prescription and over-the-counter medications including associated side effects to aid in protecting consumers.  ««»»

Food and Drug Administration  ««»»

Gateway to Neurology at Massachusetts General Hospital: Includes lots of information, including Multiple Sclerosis (MS), in static web information, web based forums and live chat rooms.   ««»»

Gentle Fitness: This exercise video is targeted to everyone who has trouble doing traditional exercise or is in a wheelchair. A woman with MS hosts this video. Also, many of the exercises are done while seated.   ««»»

Hardin MD Neurology & Neurosciences Page: Part of the University of Iowa, Hardin Library for the Health Sciences, this page, part of the Meta Directory, provides links to other lists. Nothing specific to Multiple Sclerosis, but good Neurology and Neurosciences lists.   ««»»

Health Care Financing Administration (HCFA): HCFA is now the Centers for Medicare and Medicaid Services (CMS). CMS administers the Medicare, Medicaid and Child Health insurance programs. Includes a search engine to identify Multiple Sclerosis information.   ««»»

Health on the Net Foundation: On September 8, 1995, at an international conference Geneva on the use of the internet in Healthcare, the international participants passed a unanimous resolution to create the Health on the Net Foundation. HON, a not-for-profit organization headquartered in Geneva, is dedicated to realizing the benefits of the Internet and related technologies in the fields of health and medicine. Among HON's distinguishing features are several widely-used medical search engines, including MedHunt, and the HON Code of Conduct for the provision of authoritative and reliable medical information. ««»»

MedHunt: The widely-used medical search engine developed and hosted by the Health on the Net Foundation.   ««»»

HON Code of Conduct (HONCode) for Medical and Health Websites: This code of conduct for medical and health websites designed to ensure both the accuracy and completeness of information and to disclose infrastructure information (e.g., ownership, financial relationships). Sites that join as members and subscribe to the principles display the logo.   ««»»

healthAtoZ.com: A commercial website providing consumer health information. The site includes a search engine to find Multiple Sclerosis information.   ««»»

healthfinder: healthfinder^® is a service of the U. S. Department of Health and Human Services. It is a "gateway" web site that links to a broad range of consumer health and human services information resources produced by the federal government and its many partner organizations. It offers information on (1) Hot Topics, (2) News, (3) Smart [Health] Choices, (4) Tools [additional links], (5) Personal Health, (6) a general search engine, and more.   ««»»

healthfinder MS Links: This is the result of a search on the healthfinder^® site for "multiple sclerosis".   ««»»

HealthTalk Interactive: HealthTalk Interactive connects patients with people who can answer their questions via interactive Web broadcasts --- webcasts --- that are designed to offer more than clinical medical information. HealthTalk Interactive allows patients to ask questions of experts in the webcasts, then archives the programs and transcripts on their website. The site includes a search engine to find Multiple Sclerosis information. This is a commercial site.  ««»»

Institute on Independent Living: The Institute is a Swedish not-for-profit foundation that promotes the opportunities of persons with disabilities to gain more personal and political power, self-determination, full participation and equality through information, training materials, consultancy and technical assistance.   ««»»

Jim Lubin's disABILITY Information and Resources: A part of Jim Lubin's extensive site, this section list an incredible number of links for disability information. Jim is a C2 quadriplegic, completely paralyzed from the neck down, and dependent on a ventilator to breathe. Jim uses a keyboard/mouse emulator with a sip and puff switch to type Morse codes.   ««»»

Karen G. Stone's Disability Issues Home Page: Karen is a disability activist whose columns have appeared in the Albuquerque Journal and also on the website of the Institute on Independent Living. She has also written a book: Awakening to Disability – Nothing About Us Without Us.   ««»»

Life extension Foundation: An organization dedicated to slowing and reversing aging. The organization and website feature "alternative" medicine and a decidedly anti-establishment bent.   ««»»

Life extension Foundation Multiple Sclerosis Page    ««»»

Living with Chronic Illness: A site those who live with a chronic illness or disability. A place to find inspiration, information, encouragement, and ideas!    ««»»

ChronicChatter: An unmoderated email discussion group open to anyone with an autoimmune disease. Runs on ONElist.com.   ««»»

ChronicNewsletter: A weekly email newsletter, sent every Monday. Designed to support those who live daily with the chronic pain and fatigue of an autoimmune disease. Content includes  information, tips, poems, a joke or two, but mostly medical information.   ««»»

Mayo Clinic Health Oasis: Sponsored by the Mayo Foundation for Medical education and Research, this is an excellent general medical site. Includes a search engine and a free email newsletter: Housecall.   ««»»

Housecall :The Mayo Foundation for Medical education and Research email newsletter.    ««»»

Med Help International: A not-for-profit organization that claims to be "the largest Consumer Health Network in the world." Has a search engine to locate links for Multiple Sclerosis.   ««»» 

MedWeb at the Robert W. Woodruff Health Sciences Center Library of emory University: MedWeb is a catalog of health related web sites, maintained by the emory Health Sciences Center Library to provide access to biomedical information to improve education, research and patient care.   ««»»

Multiple Disorders Support and Information: This website addresses a variety of medical issues including Down Syndrome, Heart/Infant disorders, epilepsy, Periventricular Leukomalacia and Sjogren's Syndrome. The last one, Sjogren's Sysdrome may be particularly interesting to MS sufferers.   ««»» 

Sjogren's Syndrome  ««»» 

My Handi-Capable Reporter: A combination newsletter (distributed free to medical facilities) and a website. They are dedicated to helping their readers change their outlook from pessimism to optimism.   ««»»

National Center for Chronic Disease Prevention and Health Promotion: Part of the Center for Disease Control. Includes a search engine to identify information about Multiple Sclerosis.   ««»»

National Council on Disability: Not directly relevant to Multiple Sclerosis, but relevant to disabilities in general. No site search engine.  ««»»

NCD Bulletin: A monthly publication of the National Council on Disability.  Subscriptions are managed by List Manager. Use the command "subscribe" in the text of the message.   ««»»

National Institute of Neurological Disorders and Stroke: The NINDS is an agency of the U.S. Federal Government and a component of the National Institutes of Health and the U.S. Public Health Service. It is the leading supporter of biomedical research on disorders of the brain and nervous system. The site includes a search function to locate Multiple Sclerosis information.   ««»»

National Institutes of Health: The National Institutes of Health (NIH) is one of eight health agencies of the Public Health Service, part of the Department of Health and Human Services.  (www.nih.gov)

National Library of Medicine: Part of the National Institutes of Health, includes an excellent search engine to locate articles on Multiple Sclerosis.  (wwwils.nlm.nih.gov)

Neurosurgery://On-Call: Sponsored by The American Association of Neurological Surgeons and Congress of Neurological Surgeons, this site features a set of "public pages" providing an online resource for neurosurgical information. The site includes a very basic Multiple Sclerosis FAQ page and an even more basic internet links page.  (www.neurosurgery.org)

NOAH: New York Online Access to Health: A project of City University of New York, the site includes excellent general medical information. Includes a Multiple Sclerosis section.  (www.noah-health.org/)

Ask NOAH About: Multiple Sclerosis: The Multiple Sclerosis section of NOAH: New York Online Access to Health, a project of City University of New York.  (www.noah-health.org/English/illness/neuro/muscler.html)

PubMed: PubMed is a service of the National Library of Medicine, part of the National Institutes of Health. It provides an search engine to millions of online articles.  (www.ncbi.nlm.nih.gov/PubMed)

Quackwatch: Quackwatch, Inc. is a not-for-profit corporation whose purpose is to combat health-related frauds, myths, fads, and fallacies. Its primary focus is on quackery-related information that is difficult or impossible to get elsewhere. Quackwatch is a member of the Consumer Federation of America.  (www.quackwatch.com)

RxList: RxList bills itself as the internet drug index. It provide information about drugs, including a search engine and a humor section.  (www.rxlist.com)

Savvy Patients: Supporting "integrative medicine", combining "the best of both conventional and alternative medicine", this site includes information on many medical conditions (e.g., MS), including causes, prevention, and treatment options as well as links to alternative practitioners and related sites.  ««»»

World Association of Persons with disAbilities: While not focused specifically on Multiple Sclerosis, the WAPD advances the interests of persons with disAbilities at national, state, local and home levels. Over ten years of "grassroots" planning and growth have catapulted the association to a world leadership position, advancing the soundness and empowerment of the so called "disAbled" everywhere.  (www.wapd.org) 

World Health Organization  (www.who.org)

Multiple Sclerosis Pages On My Site

Multiple Sclerosis and My Life: Information about how Multiple Sclerosis has affected me and why I decided to create these pages.  ««»»

Frequently Asked Questions (FAQ)  ««»»

Multiple Sclerosis Links and Resources: A boatload of links. Wazillions of links. And a few more. But . . . Even though there are many links here, these are not all the links. Be sure to check the other sections for the specialty links.  ««»»

Local and Non-US Organizations: Includes state by state listings of local organizations, including the chapters of the National Multiple Sclerosis Society.  ««»»

Chat, Forums and eMail Discussion Groups  ««»»

Commercial Sites and Commercial Journals  ««»»

General Medical Sites and Other Resources: Not specifically related to Multiple Sclerosis, but offering general medical information. Many feature search engines to locate Multiple Sclerosis information or Multiple Sclerosis sections within their site.  ««»»

Personal Stories: Personal websites featuring the webmaster's personal experience with Multiple Sclerosis. Most also include some links to other Multiple Sclerosis resources.  ««»»

Books: Books about Multiple Sclerosis (like you really needed that description).  ««»»

Who Are the People With Multiple Sclerosis?: A moving essay by Virginia Sanchez (used with permission).  ««»»

Multiple Sclerosis and Children: Special information about MS in children and why I hope to honor them with my site. ««»»

Guest Article: Social Security and Multiple Sclerosis (MS) - Applying for Social Security Disability with Multiple Sclerosis: A guest article by John Dowling, the Senior editor of Social Security Disability Help.  ««»»

Guest Article: Stem Cells Showing Great Promise in Remyelinization: A guest article by Daryl Clayton Kennedy.  ««»»

A Measure of Time - My Life With MS: This book by Lauren Singer is available directly from the author. This page on my site provides a tiny amount of publicity for this book. By the way, her dog is named Fred Huggins.   ««»»  

As for Tomorrow I Cannot Say: 33 Years with Multiple Sclerosis: I review this book by Diana Neutze.  ««»»  

Life on Cripple Creek - essays on Living with Multiple Sclerosis: I review this book by Dean Kramer.  ««»»  

My Story: A Photographic essay on Life with Multiple Sclerosis: I review this book by Amelia Davis.  ««»»  

When the Road Turns - Inspirational Stories About People with MS: I review this book by Margot Russell.  ««»»  

A Special Note If You Jumped Into My Site
Directly to This Page

This topic is just a part of my overall website. After you check out this topic, you might like to explore the rest of my site and get to know me better.  I recommend that you start with my "Home" Page, then go to the "Front Door", then to "Stuff About Me" and finally, just explore the site. The buttons on the left will take you there.

If You Would Like to Link to My Multiple Sclerosis Pages

Many webmasters only want people to link to the "primary" page of a website. I have a different view.

Because of the importance of Multiple Sclerosis to me I actually encourage other Multiple Sclerosis sites to link directly to my Multiple Sclerosis pages. Click here to find out my special requests for linking to my Multiple Sclerosis pages.

Awards

The following awards were awarded specifically for the
James S. Huggins' Refrigerator Door: Multiple Sclerosis Pages.

Outstanding Website Award   1999  sponsored by Disability Network	Outstanding Website Award 1999 awarded 25.Oct.1999 by the Disability Network

	editor's Choice Award awarded 26.Oct.1999 by HealingWell.com

	Facing Challenge Award awarded 30.Oct.1999 by Facing Challenge Award

	Helping Hands Award awarded 15.Nov.1999 by Living With Multiple Sclerosis

Directory Links

This section of my site (James S. Huggins' Refrigerator Door: Multiple Sclerosis Pages), is listed in the following directories.

	Good Health Directory linked 20.Mar.2000

	HealingWell.com linked 26.Oct.1999 (see also editor's Choice Award above)

	Health-Library linked 21.Aug.2000

	HealthLinks linked 02.Feb.2001

	Medexplorer linked 02.Feb.2001

	This site complies with the HONcode standard for trustworthy health information of the Health On the Net Foundation: you can verify that here.

	This site was a Medinex Certified Health Site and subscribed to the Medinex Code of ethics. [NB: The above links point to an archive previous page. hosted by the Internet Archive Wayback Machine. The assets of Medinex were sold in a Chapter 11 bankruptcy sale in March 2003. The site is no longer functional.]