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Multiple Sclerosis (MS)
email
Discussion Lists, Forums, Chat Rooms, and Free Publications
1_for_Caregivers:
This list is for anyone who takes care of someone who cannot take care of themselves: young children, teenagers, middle aged on up to the elderly. A caregiver is a very important person.
And caregivers need a place to vent and to share feelings and experiences with others who are going through the same things too. Runs on eGroups.
[You may also subscribe by sending a blank email to 1_for_Caregivers-subscribe@eGroups.com.
There are four lists that are a part of this group: 1_for_Caregivers, MSers_Online, MSers_Online_Fun and MSersSupportingMSers.]
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About-MS:
A moderated email discussion group open to anyone with an interest in Multiple Sclerosis. Runs on eGroups.com.
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And I Will Give You Rest:
This monthly Christian based support newsletter from Rest Ministries is available in two forms: (1) a free email based condensed version, and (2) a paid ($15) hardcopy snail-mailed
version.
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Autoimmune-Research:
Autoimmune-Research is a Majordomo based, moderated, email discussion list owned and run by the International MS Support Foundation. The site provides a web based subscription form. When you click on "Subscribe MSNeWS" you go to the
MajorCool list manager. Enter your email address, click on "all" lists, select QuickView Mode, and click "Go". You'll see all lists hosted on the server. Click on "Autoimmune-Research". Then, on the next page, click "Apply". You'll receive confirmation by email.
[NB: even though the URL says "listserv" this is a Majordomo based list. You may also subscribe by sending an email to Majordomo@window-seat.com with the command "subscribe autoimmune-research" in the body of the message.]
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Best of M. S.:
A web based forum hosted at Delphi Forums (free registration is required).
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Canadian MS'ers:
A Yahoo! club for MSers in Canada. You do not have to subscribe to read; subscription is required to post. Also, Yahoo! Clubs now permit receiving posts via email.
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ChronicChatter:
An unmoderated email discussion group open to anyone with an autoimmune disease. Affiliated with the Living with Chronic Illness website. Runs on eGroups.com.
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Chronic Pain Devotional:
This daily, devotional email from Rest Ministries is hosted by eGroups. (Scroll down on the page to find it.)
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Daily Motivational Mailing:
A daily email by ellen K. Hatcher. To subscribe, just ask.
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eSupport:
General support group open to patients, caregivers, and friends of people who have been affected by all types of diseases and conditions including Multiple Sclerosis. Runs on eGroups.
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Healthlinks.net Newsletter:
A monthly emailed newsletter containing articles about healthcare, computer and internet subjects.
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Home Away From Home (A MS Message Board):
A message board for those with MS, plus caregivers, friends, family and anyone wanting to learn more.
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Housecall:
The Mayo Foundation for Medical education and Research email newsletter.
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IRC: #MSFunChat:
This is the home page for the channel. There is also an email list.
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Jooly's Joint email Lists:
Part of the Jooly's Joint website these email lists include lists for (1) general postings, (2) parents, (3) newly diagnosed, (4) Christians, (5) gay men and lesbians, (6) PWMS at work, (7) children
(moderated list) and (8) humor.
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Jooly's New to MS Forum:
A forum for people newly diagnosed with MS or going through the diagnostic process.
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KnowMS.com:
A place to reach out. A place to share. A place to know. An online community of people with multiple sclerosis dedicated to sharing personal stories and experiences.
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MedSupport FSF International Newsletter:
The on-the-web newsletter. Includes a plain-text version and archives.
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MedSupport FSF Multiple Sclerosis Forum:
A web based forum hosted at Delphi Forums (free registration is required).
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Mental Health Net Newsletter:
a twice monthly newsletter. Sign up on the main page.
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Mommyv's Friends With MS Forum:
A web based forum hosted at Delphi Forums (free registration is required).
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MS Canadian List:
A discussion list (majordomo) for Multiple Sclerosis (MS). To subscribe, use the command "subscribe MS_CAN-l" or "subscribe MS_CAN-l your-email-address" in the text of the message.
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MS Central Support:
The web based forum (Delphi Forums) moderated by Multiple Sclerosis Central.
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MS Community:
A discussion list (Yahoo! Group) for Multiple Sclerosis (MS). To subscribe, send an email to MS_Community-subscribe@YahooGroups.com. Or, go to the list website at
groups.yahoo.com/group/MS_Community.
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M. S. Friends Global:
This web based forum (Delphi Forums) is moderated by Astrid.
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MS Hive Chat:
A chat room related to the MS Hive.
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MS
Multiple Sclerosis Symptoms:
This is the site of one MSer for MSers and their families with lots of
valuable information about Multiple Sclerosis, most frequent symptoms and most
important, how to live better with MS.
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MS Only Forum:
Affiliated with MS Only, a monthly, paid circulation magazine.
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MS People UK:
This forum is owned and operated by Marina O'Brien, who also moderates the YahooGroups list of the MS Trust in england. While members are
predominantly from the UK, they also have members from the USofA and other countries as well.
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MS Posse:
The website.
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MS Posse:
An email Multiple Sclerosis support forum. To join, send a request to the moderator, Lillian C. Medley.
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MS Togetherness:
A web based forum hosted at Delphi Forums (free registration is required).
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MS Web People:
A personal site and excellent MS web forum by Peter Anderson. It also uses some of the most interesting presentation techniques of any I've encountered.
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MS-Quads:
Designed for people with advanced MS. Most organizations seem to focus on people who are newly diagnosed or have relatively mild symptoms. MS-Quads is for people with advanced MS, their family, friends and
caregivers.
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mscured:
People sharing information on curing Multiple Sclerosis. Runs on eGroups.
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MSers_Online:
This list was created for anyone who has Multiple Sclerosis, a family member, relatives, caregivers, a friend, a co-worker or if you know someone with Multiple Sclerosis that you would like to
help. This list was eGroups of the Week for Sept. 6, 1999! Headline: "MSers Online - Community saves life!" The group, by email, fast action, and banning together as a group, saved the life of a beloved fellow member and a dear friend, who was in grave danger! Runs on eGroups.
[You may also subscribe by sending a blank email to MSers_Online-subscribe@eGroups.com.
There are four lists that are a part of this group: 1_for_Caregivers, MSers_Online, MSers_Online_Fun and MSersSupportingMSers.]
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MSers_Online_Fun:
This list was created on 22.Oct.1999, the first birthday of MSers_Online. With this list, (almost) anything goes. We all need to have fun at sometime or another. Laughter is a very
important outlet when we have to deal with MS everyday. Please feel free to have fun but also keep it clean! Runs on eGroups.
[You may also subscribe by sending a blank email to MSers_Online_Fun-subscribe@eGroups.com.
There are four lists that are a part of this group: 1_for_Caregivers, MSers_Online, MSers_Online_Fun and MSersSupportingMSers.]
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MSersForum:
MSersForum consists of a mailing list, a daily digest, and a web based message board. Free and moderated (by Thomas J. Copeland of ThJuland's MSers Glen), it is open to anyone who is dealing with living and learning
about Multiple Sclerosis.
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MSersSupportingMSers:
This list is to support others who need to vent, talk about MS, family, doctors, drugs, disability aids, etc. Anything that has to do with MS. Runs on eGroups.
[You may also subscribe by sending a blank email to MSersSupportingMSers-subscribe@eGroups.com.
There are four lists that are a part of this group: 1_for_Caregivers, MSers_Online, MSers_Online_Fun and MSersSupportingMSers.]
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MSfriends:
A forum for those people with Multiple Sclerosis to exchange information and emotional support. Run by ellen K. Hatcher. Runs on eGroups.
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MSLIST:
A discussion list (listserv) for Multiple Sclerosis (MS). To subscribe, use the command "subscribe MSLIST-L" or "subscribe MSLIST-L your-email-address" in the text of the message.
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MSNeWS:
MSNeWS is a Majordomo based, moderated, email discussion list owned and run by the International MS Support Foundation. The site provides a web based subscription form. When you click on "Subscribe MSNeWS" you go to the MajorCool list manager. Enter
your email address, click on "all" lists, select QuickView Mode, and click "Go". You'll see all lists hosted on the server. Click on "MSNeWS". Then, on the next page, click "Apply". You'll receive confirmation by email.
[NB: even though the URL says "listserv" this is a Majordomo based list.]
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MSWorld Caregivers e-mail exchange Service (CARe):
An email group for those who take care of or care about someone who has been diagnosed with Multiple Sclerosis.
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MSWorld e-mail exchange Service (eSS):
An email group for those who have been diagnosed with Multiple Sclerosis who wish to write others who also have MS.
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MSWorld LivingMS:
An award winning online Multiple Sclerosis web magazine sponsored by MSWorld.
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MSWorld Message Boards:
A variety of message boards all related to Multiple Sclerosis.
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Multiple Sclerosis Foundation, Inc.:
Founded in 1986, the Multiple Sclerosis Foundation claims to be the oldest national support organization that focuses on both complementary and conventional health care options. Includes a
quarterly newsletter, MSFocus.
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Monthly Newsletter:
A monthly email newsletter. To sign up, see the sign up form on this page, and on many other pages of the site.
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MSFocus:
The quarterly (printed, snail-mailed) newsletter of the the Multiple Sclerosis Foundation. Subscriptions are free.
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Support Group Newsletter:
The quarterly (printed, snail-mailed) publication of the Multiple Sclerosis Foundation is free.
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The Multiple Sclerosis Information exchange:
A discussion list for Multiple Sclerosis. To subscribe, use the command "subscribe" in the text of the message.
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Multiple Sclerosis Support Group of Bellevue:
An eGroup mailing list.
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MultipleSclerosis:
This list is dedicated to be an information and support list for people with Multiple Sclerosis. Runs on eGroups.
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OurSpace:
OurSpace is a support group of, by, and for people with Multiple Sclerosis. It is an email list with no specific topic. What draws its members together is the need to discuss and share; the tie that binds is Multiple
Sclerosis. Topics include Multiple Sclerosis, living with Multiple Sclerosis, requests for help, practical advice, and just about anything else. OurSpace is moderated by Virginia Sanchez who also wrote the essay "Who Are the People With Multiple Sclerosis?".
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Pixie's Portal:
See Significant Other Information exchange (SOIe).
Transformations Chats:
Chat channels include (a) Twelve Steps, (b) SupportGroup, (c) MoreSupport and (d) OpenSupport.
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Wendy's Multiple Sclerosis Forum
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What's New at Colorado Health Site:
The email newsletter of the Colorado Health Site.
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WOMS:
WOMS (the World of Multiple Sclerosis Update Service) is a Majordomo based, announcement list owned and run by the International Federation of Multiple Sclerosis Societies. The site provides a web based subscription form off the main page (labeled
"Keep Up To Date"). You'll receive confirmation by email. You must respond to this confirmation email to be entered on the list.
[NB: You may also subscribe by sending an email to Majordomo@mail.nsms.net with the command "subscribe woms" in the body of the message.]
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Multiple
Sclerosis Pages On My Site
Multiple Sclerosis and My
Life:
Information about how Multiple Sclerosis has affected me and why I decided to create these pages.
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Frequently Asked Questions (FAQ)
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Multiple Sclerosis Links
and Resources:
A boatload of links. Wazillions of links. And a few more. But . . . Even though there are many links here, these are not all the links. Be sure to check the other sections for the specialty
links.
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Local and Non-US Organizations:
Includes state by state listings of local organizations, including the chapters of the National Multiple Sclerosis Society.
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Chat, Forums and eMail Discussion Groups
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Commercial Sites and Commercial Journals
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General Medical Sites and Other Resources:
Not specifically related to Multiple Sclerosis, but offering general medical information. Many feature search engines to locate Multiple Sclerosis
information or Multiple Sclerosis sections within their site.
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Personal Stories:
Personal websites featuring the webmaster's personal experience with Multiple Sclerosis. Most also include some links to other Multiple Sclerosis resources.
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Books:
Books about Multiple Sclerosis (like you really needed that description).
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Who Are the People With Multiple Sclerosis?:
A moving essay by Virginia Sanchez (used with permission).
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Multiple Sclerosis and Children:
Special information about MS in children and why I hope to honor them with my site.
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Guest
Article: Social Security and Multiple Sclerosis (MS) - Applying for Social Security Disability with Multiple Sclerosis:
A guest article by John Dowling, the Senior editor of Social Security Disability Help.
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Guest
Article: Stem Cells Showing Great Promise in Remyelinization:
A guest article by Daryl Clayton Kennedy.
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A Measure of Time - My Life With MS:
This book by Lauren Singer is available directly from the author. This page on my site provides a tiny amount of publicity for this book. By the way, her dog is named Fred Huggins.
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As for Tomorrow I Cannot Say: 33 Years with Multiple Sclerosis:
I review this book by Diana Neutze. ««»»
Life on Cripple Creek - essays on Living with Multiple Sclerosis:
I review this book by Dean Kramer. ««»»
My Story: A Photographic essay on Life with Multiple Sclerosis:
I review this book by Amelia Davis. ««»»
When the Road Turns - Inspirational Stories About People with MS:
I review this book by Margot Russell. ««»»
A Special Note If You Jumped Into My Site
Directly to This Page
This topic is just a part of my overall website. After you check out this topic, you might like to explore the rest of my site and get to know me better. I recommend that you start with my "Home" Page, then go to the "Front Door", then to "Stuff About Me" and finally, just
explore the site. The buttons on the left will take you there.
If You Would Like to Link to My Multiple Sclerosis Pages
Many webmasters only want people to link to the "primary" page of a website.
I have a different view.
Because of the importance of Multiple Sclerosis to me I actually encourage
other Multiple Sclerosis sites to link directly to my Multiple Sclerosis pages.
Click here to find out
my special requests for linking to my Multiple Sclerosis pages.
Awards
The following awards were awarded specifically for the
James S. Huggins' Refrigerator Door: Multiple Sclerosis Pages.
Directory Links
This section of my site (James S. Huggins' Refrigerator Door: Multiple
Sclerosis Pages), is listed in the following directories.
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Good Health Directory
linked 20.Mar.2000 |
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HealingWell.com
linked 26.Oct.1999
(see also editor's Choice Award above) |
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Health-Library
linked 21.Aug.2000 |
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HealthLinks
linked 02.Feb.2001 |
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Medexplorer
linked 02.Feb.2001 |
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This site was a
Medinex
Certified Health Site and subscribed to the
Medinex Code of ethics.
[NB: The above links point to an archive previous page. hosted by the
Internet Archive Wayback Machine.
The assets of Medinex were sold in a Chapter 11 bankruptcy sale in March 2003.
The site is no longer functional.]
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Disclaimer:
I am not a licensed or trained health care provider. I'm just a guy who
cares (bunches) about Multiple Sclerosis and who spends (too much) time on the
net. I provide the medical information on this website for educational and
informational purposes only. It is not a substitute for a health care provider's
care and consultation. Please consult your health care provider about any
opinions or recommendations with respect to your own symptoms and conditions.
Any treatment or nutritional product mentioned on this site is not intended or
claimed to diagnose, treat, cure or prevent any disease. Please
advise me of any errors or omissions you
detect. I receive no funds from any medical products companies. And, I fully
disclose all other product affiliations on the Disclaimers,
Copyrights and Other Legal Stuff
page on this site. |
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