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Multiple Sclerosis and Children
I originally created the Multiple Sclerosis section of my website as a tribute to my father and my grandmother, both of whom died as an indirect result of the illness.
However, my life has been touched since that time by others with MS.
MS rarely affects those less than 15. But if you ever spend time with a child with MS, the fact that it is rare at that age will matter not at all.
And while MS in children is rarely the direct cause of death, if you ever witness a child with MS take her last breath as a result of complications or as an indirect result of the condition (e.g., an accident induced because of MS), you will be
touched in a way that will permeate your being.
In addition to the memory of my father and grandmother, I offer the MS section of my website to all children with MS, including those I do not know, and particularly to those who have passed much too early because of the disease.
Out of respect to their families I do not disclose names or other specifics, nor do I focus either on the children or on the tragedy itself. Rather I hope that in some small way this section of my site, not only honors them and helps the families
to remember them, but also helps others to understand this disease.
Children with MS:
A page on Jean Sumption's International MS Support Foundation site. This page includes postings from children with MS.
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Colorado Health Site: Multiple Sclerosis and Children:
Questions and answers about Multiple Sclerosis and children.
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Multiple Sclerosis in Children Abstract Index:
Information about and links to articles about Multiple Sclerosis in children.
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Multiple Sclerosis in Children:
A very small page from the University of Chicago Hospitals Department of Neurology.
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Multiple
Sclerosis Pages On My Site
Multiple Sclerosis and My
Life:
Information about how Multiple Sclerosis has affected me and why I decided to create these pages.
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Frequently Asked Questions (FAQ)
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Multiple Sclerosis Links
and Resources:
A boatload of links. Wazillions of links. And a few more. But . . . Even though there are many links here, these are not all the links. Be sure to check the other sections for the specialty
links.
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Local and Non-US Organizations:
Includes state by state listings of local organizations, including the chapters of the National Multiple Sclerosis Society.
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Chat, Forums and eMail Discussion Groups
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Commercial Sites and Commercial Journals
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General Medical Sites and Other Resources:
Not specifically related to Multiple Sclerosis, but offering general medical information. Many feature search engines to locate Multiple Sclerosis
information or Multiple Sclerosis sections within their site.
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Personal Stories:
Personal websites featuring the webmaster's personal experience with Multiple Sclerosis. Most also include some links to other Multiple Sclerosis resources.
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Books:
Books about Multiple Sclerosis (like you really needed that description).
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Who Are the People With Multiple Sclerosis?:
A moving essay by Virginia Sanchez (used with permission).
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Multiple Sclerosis and Children:
Special information about MS in children and why I hope to honor them with my site.
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Guest
Article: Social Security and Multiple Sclerosis (MS) - Applying for Social Security Disability with Multiple Sclerosis:
A guest article by John Dowling, the Senior editor of Social Security Disability Help.
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Guest
Article: Stem Cells Showing Great Promise in Remyelinization:
A guest article by Daryl Clayton Kennedy.
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A Measure of Time - My Life With MS:
This book by Lauren Singer is available directly from the author. This page on my site provides a tiny amount of publicity for this book. By the way, her dog is named Fred Huggins.
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As for Tomorrow I Cannot Say: 33 Years with Multiple Sclerosis:
I review this book by Diana Neutze. ««»»
Life on Cripple Creek - essays on Living with Multiple Sclerosis:
I review this book by Dean Kramer. ««»»
My Story: A Photographic essay on Life with Multiple Sclerosis:
I review this book by Amelia Davis. ««»»
When the Road Turns - Inspirational Stories About People with MS:
I review this book by Margot Russell. ««»»
A Special Note If You Jumped Into My Site
Directly to This Page
This topic is just a part of my overall website. After you check out this topic, you might like to explore the rest of my site and get to know me better. I recommend that you start with my "Home" Page, then go to the "Front Door", then to "Stuff About Me" and finally, just
explore the site. The buttons on the left will take you there.
If You Would Like to Link to My Multiple Sclerosis Pages
Many webmasters only want people to link to the "primary" page of a website.
I have a different view.
Because of the importance of Multiple Sclerosis to me I actually encourage
other Multiple Sclerosis sites to link directly to my Multiple Sclerosis pages.
Click here to find out
my special requests for linking to my Multiple Sclerosis pages.
Awards
The following awards were awarded specifically for the
James S. Huggins' Refrigerator Door: Multiple Sclerosis Pages.
Directory Links
This section of my site (James S. Huggins' Refrigerator Door: Multiple
Sclerosis Pages), is listed in the following directories.
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Good Health Directory
linked 20.Mar.2000 |
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HealingWell.com
linked 26.Oct.1999
(see also editor's Choice Award above) |
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Health-Library
linked 21.Aug.2000 |
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HealthLinks
linked 02.Feb.2001 |
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Medexplorer
linked 02.Feb.2001 |
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This site was a
Medinex
Certified Health Site and subscribed to the
Medinex Code of ethics.
[NB: The above links point to an archive previous page. hosted by the
Internet Archive Wayback Machine.
The assets of Medinex were sold in a Chapter 11 bankruptcy sale in March 2003.
The site is no longer functional.]
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Disclaimer:
I am not a licensed or trained health care provider. I'm just a guy who
cares (bunches) about Multiple Sclerosis and who spends (too much) time on the
net. I provide the medical information on this website for educational and
informational purposes only. It is not a substitute for a health care provider's
care and consultation. Please consult your health care provider about any
opinions or recommendations with respect to your own symptoms and conditions.
Any treatment or nutritional product mentioned on this site is not intended or
claimed to diagnose, treat, cure or prevent any disease. Please
advise me of any errors or omissions you
detect. I receive no funds from any medical products companies. And, I fully
disclose all other product affiliations on the Disclaimers,
Copyrights and Other Legal Stuff
page on this site. |
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