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Click
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Multiple Sclerosis and My
Life
My father died of Multiple Sclerosis. So did my grandmother.
Now, technically those statements are not true. Doctors will tell you that Multiple Sclerosis is not fatal. And doctors are technically correct.
But the effect of Multiple Sclerosis on both my father and on my grandmother was that they died.
She died of an accidental fall before I was born. I never got to meet her.
My father died of pneumonia, as a complication of hip replacement surgery, necessary as a result of a fall.
So you see, although Multiple Sclerosis was technically not the "cause of death" in either case, they both died of Multiple Sclerosis.
Recently, while searching for appropriate Webrings to join, I encountered the Multiple Sclerosis Webring. I thought I'd join to express my support.
Then I discovered that it isn't a general support Webring. Rather, it is only for websites and web pages that offer something of value related to Multiple Sclerosis: personal stories, information and links to other relevant sites.
So, I withdrew my "application" and began seriously to develop a new page on my site for Multiple Sclerosis.
Because I am "obsessive/compulsive", I didn't just create one page. I ended up creating an entire section of my website. It is one of the sections of which I am most proud.
In September 2000, Yahoo! assimilated the Original WebRing system. The original ringmaster of the Multiple Sclerosis Webring decided to shut it down. At the time it was shut down, it had more than 250 members. Instead, she has created a Yahoo! Club: Unii's Multiple Sclerosis Club.
Meanwhile, the Multiple Sclerosis Webring has been restarted on RingSurf and I have rejoined that webring.
Though it has no relevance to anything, I found it interesting that the original ringmaster of the Multiple Sclerosis Webring and I share a birthday . . . years apart to be sure, but still shared.
Recently, several people have written me asking about my MS. And their questions and comments made it clear that I wasn't clear. I am not currently diagnosed with MS and have no MS symptoms. I didn't create this section because of any direct personal experience with MS. I created it for my father and grandmother.
Multiple
Sclerosis Pages On My Site
Multiple Sclerosis and My
Life:
Information about how Multiple Sclerosis has affected me and why I decided to create these pages.
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Frequently Asked Questions (FAQ)
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Multiple Sclerosis Links
and Resources:
A boatload of links. Wazillions of links. And a few more. But . . . Even though there are many links here, these are not all the links. Be sure to check the other sections for the specialty
links.
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Local and Non-US Organizations:
Includes state by state listings of local organizations, including the chapters of the National Multiple Sclerosis Society.
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Chat, Forums and eMail Discussion Groups
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Commercial Sites and Commercial Journals
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General Medical Sites and Other Resources:
Not specifically related to Multiple Sclerosis, but offering general medical information. Many feature search engines to locate Multiple Sclerosis
information or Multiple Sclerosis sections within their site.
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Personal Stories:
Personal websites featuring the webmaster's personal experience with Multiple Sclerosis. Most also include some links to other Multiple Sclerosis resources.
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Books:
Books about Multiple Sclerosis (like you really needed that description).
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Who Are the People With Multiple Sclerosis?:
A moving essay by Virginia Sanchez (used with permission).
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Multiple Sclerosis and Children:
Special information about MS in children and why I hope to honor them with my site.
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Guest
Article: Social Security and Multiple Sclerosis (MS) - Applying for Social Security Disability with Multiple Sclerosis:
A guest article by John Dowling, the Senior editor of Social Security Disability Help.
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Guest
Article: Stem Cells Showing Great Promise in Remyelinization:
A guest article by Daryl Clayton Kennedy.
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A Measure of Time - My Life With MS:
This book by Lauren Singer is available directly from the author. This page on my site provides a tiny amount of publicity for this book. By the way, her dog is named Fred Huggins.
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As for Tomorrow I Cannot Say: 33 Years with Multiple Sclerosis:
I review this book by Diana Neutze. ««»»
Life on Cripple Creek - essays on Living with Multiple Sclerosis:
I review this book by Dean Kramer. ««»»
My Story: A Photographic essay on Life with Multiple Sclerosis:
I review this book by Amelia Davis. ««»»
When the Road Turns - Inspirational Stories About People with MS:
I review this book by Margot Russell. ««»»
A Special Note If You Jumped Into My Site
Directly to This Page
This topic is just a part of my overall website. After you check out this topic, you might like to explore the rest of my site and get to know me better. I recommend that you start with my "Home" Page, then go to the "Front Door", then to "Stuff About Me" and finally, just
explore the site. The buttons on the left will take you there.
If You Would Like to Link to My Multiple Sclerosis Pages
Many webmasters only want people to link to the "primary" page of a website.
I have a different view.
Because of the importance of Multiple Sclerosis to me I actually encourage
other Multiple Sclerosis sites to link directly to my Multiple Sclerosis pages.
Click here to find out
my special requests for linking to my Multiple Sclerosis pages.
Awards
The following awards were awarded specifically for the
James S. Huggins' Refrigerator Door: Multiple Sclerosis Pages.
Directory Links
This section of my site (James S. Huggins' Refrigerator Door: Multiple
Sclerosis Pages), is listed in the following directories.
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Good Health Directory
linked 20.Mar.2000 |
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HealingWell.com
linked 26.Oct.1999
(see also editor's Choice Award above) |
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Health-Library
linked 21.Aug.2000 |
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HealthLinks
linked 02.Feb.2001 |
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Medexplorer
linked 02.Feb.2001 |
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This site was a
Medinex
Certified Health Site and subscribed to the
Medinex Code of ethics.
[NB: The above links point to an archive previous page. hosted by the
Internet Archive Wayback Machine.
The assets of Medinex were sold in a Chapter 11 bankruptcy sale in March 2003.
The site is no longer functional.]
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Disclaimer:
I am not a licensed or trained health care provider. I'm just a guy who
cares (bunches) about Multiple Sclerosis and who spends (too much) time on the
net. I provide the medical information on this website for educational and
informational purposes only. It is not a substitute for a health care provider's
care and consultation. Please consult your health care provider about any
opinions or recommendations with respect to your own symptoms and conditions.
Any treatment or nutritional product mentioned on this site is not intended or
claimed to diagnose, treat, cure or prevent any disease. Please
advise me of any errors or omissions you
detect. I receive no funds from any medical products companies. And, I fully
disclose all other product affiliations on the Disclaimers,
Copyrights and Other Legal Stuff
page on this site. |
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